The role of caregiver is a sacred responsibility. Caring for someone whose well-being rests solely upon you is an incredibly…
Kelly Wallis
Kelly Wallis lives in Houston, Texas. She is a music therapist who works with the elderly population, and also serves as the organist for her church. She lives with her husband of 31 years and her daughter Abby. Abby was diagnosed at age 22 with Sanfilippo syndrome in 2017. Sanfilippo is also called “childhood Alzheimer’s” because it presents similarly to dementia. Abby has an attenuated form of Sanfilippo, meaning it is slower progressing. She writes alongside her other daughter, Emily, about hardships endured as a caregiver with honesty and humor.
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Articles by Kelly Wallis
Loss is a theme that persistently has occupied my thoughts lately, not only because of current events in the world,…
Why I’m Feeling Numb
Do you ever feel like you are walking through life with no emotion? Getting up each day, going through your…
My 74-year-old mom unexpectedly passed away two weeks ago. It is still surreal to even type that statement. She was…
There’s nothing like a global pandemic to provide some perspective. Being forced to stay home, practice social distancing, and work…
My daughter Abby has Sanfilippo syndrome, a rare and terminal disease with no cure. Every year my husband, Jeff,…
My daughter Abby has a terminal illness called Sanfilippo syndrome. This condition has stolen so much of Abby from our…
I am raising a terminally ill child, my daughter, Abby. This has caused many to call me a hero, warrior,…
Grieving My Living Daughter
My daughter, Abby, is 24 and has Sanfilippo syndrome, which will one day claim her life. I already feel like…
Parenting a terminally ill child carries emotional baggage. It can be subtle or sudden and feel like an extra…