Health Insights

October 13, 2020October 13, 2020

Sanfilippo Syndrome and Scoliosis

Health Insights

Sanfilippo syndrome, also known as mucopolysaccharidosis type III, can lead to issues with the bones and joints, including a condition known as scoliosis. What is scoliosis? Scoliosis is a ... Read more

October 6, 2020October 6, 2020

Sanfilippo Syndrome and Anesthesia

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Sanfilippo syndrome patients sometimes need to undergo procedures that require anesthesia. Following is information about anesthesia, including possible risks and precautions that can be taken. What is anesthesia? Anesthesia is ... Read more

September 29, 2020September 29, 2020

Hip Surgery for Sanfilippo Syndrome

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Patients with Sanfilippo syndrome may experience hip pain. There are several factors that can cause this. In some instances, hip surgery may be needed. The following will give you ... Read more

September 23, 2020September 23, 2020

Feeding Tubes for Sanfilippo Syndrome Patients

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Eating and drinking can be problematic in Sanfilippo syndrome, a rare neurodegenerative disorder characterized by intellectual and behavioral disabilities. Finding out your child may need a feeding tube can be ... Read more

September 15, 2020September 15, 2020

Feeding Tips for Children With Sanfilippo Syndrome

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Disabilities due to Sanfilippo syndrome can lead to challenges with eating and drinking that can make feeding patients difficult. The rare genetic disorder, also known as mucopolysaccharidosis type III (MPS ... Read more

September 8, 2020September 8, 2020

Hydrotherapy for Sanfilippo Syndrome

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Patients with Sanfillipo syndrome can develop muscle weakness as well as joint stiffness and pain as they age. Physiotherapy can help improve muscle strength and flexibility. Research also has ... Read more

September 1, 2020September 1, 2020

Aids and Adaptations for Children With Sanfilippo Syndrome

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Because of Sanfilippo syndrome‘s progressive behavioral and intellectual disabilities, it’s likely your child will need aids and adaptations to help with everyday life. The following information may be useful ... Read more

August 19, 2020August 19, 2020

Seizures in Sanfilippo Syndrome

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Sanfilippo syndrome is a rare genetic disorder characterized by mental and developmental disabilities. Patients are unable to break down a complex sugar molecule called glycosaminoglycans (GAGs), also called mucopolysaccharides. ... Read more

August 11, 2020August 11, 2020

How Can Physiotherapy Help My Child With Sanfilippo Syndrome?

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If your child has Sanfilippo syndrome, physiotherapy can likely help with symptoms that include spasticity and the progressive loss of mobility. Here are some things to consider. What is ... Read more

August 4, 2020August 4, 2020

Sanfilippo Syndrome and Sleep

Health Insights

Sanfilippo syndrome is a rare neurodegenerative disorder that causes intellectual and behavioral disabilities. Sleep problems are common, and often severe and difficult to manage. Here are some points to ... Read more

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