There may come a time when you will need to consider palliative care for your child with Sanfilippo syndrome, and for your family. Here’s some information that may help ... Read more
Sanfilippo syndrome is a neurodegenerative disorder that affects about one in 70,000 births. Because it’s rare, many physicians are unfamiliar with it and its treatment. This could pose a ... Read more
Children with Sanfilippo syndrome frequently have trouble sleeping. To help them rest better, be more alert and potentially reduce daytime behavioral issues, you may want to practice sleep hygiene ... Read more
Sanfilippo syndrome can cause a number of symptoms, including speech and developmental delays, behavioral issues, and impaired hearing and vision. Here is information about how the disorder can cause ... Read more
Hearing loss is a common symptom for people with Sanfilippo syndrome. This article offers insight about ways in which the disease can affect hearing, and also offers information about ... Read more
Children with Sanfilippo syndrome commonly have behavioral problems, which can have a negative effect on the lives of family members and caregivers. Read on for more information about such ... Read more
If your child has been diagnosed with Sanfilippo syndrome, you may be feeling mixed emotions, from shock to concern to the relief that certainty can bring. The disorder is ... Read more
Sanfilippo syndrome’s prevalence — the estimate of how common a disease is in a specific population — varies between geographic areas around the world. There also is variation between ... Read more
Sanfilippo syndrome is a progressive genetic disorder marked by continual damage to brain cells and early death. There are four subtypes of Sanfilippo, each caused by a specific genetic ... Read more
Sanfilippo syndrome is a rare genetic disorder related to the metabolism of a large sugar molecule called heparan sulfate. The buildup of heparan sulfate causes damage to the brain ... Read more
