Kelly Wallis,  —

Houston-based Kelly is a music therapist working with special needs children. She’s also the organist for her church. She thoroughly enjoys having music weave into every part of her daily life and work. She’s been married to her husband, Jeff, for 27 years, and they have two daughters, Abby and Emily. She writes about life as a caregiver for Abby, who has Sanfilippo Syndrome.

Articles by Kelly Wallis

My Daughter Has a Terminal Illness. Now What?

My daughter Abby was diagnosed with Sanfilippo syndrome almost two years ago. It took a while to live with the shock of the diagnosis. Not long before she was diagnosed, I received the news that I had cancer, so my family was already in “adaptation” mode. We had shifted to…

My Daughter’s Journey to a Diagnosis

My daughter Abby was 22 when she was diagnosed with Sanfilippo syndrome. We were devastated. Like any other significant event, things are now classified as “before” or “after” the diagnosis. Abby was somewhat self-sufficient as a child. She could eat by herself and get dressed with some assistance. She…