Recently, the family of American actor Bruce Willis announced he has been diagnosed with aphasia. The news has raised…
Kelly Wallis
Kelly Wallis lives in Houston, Texas. She is a music therapist who works with the elderly population, and also serves as the organist for her church. She lives with her husband of 31 years and her daughter Abby. Abby was diagnosed at age 22 with Sanfilippo syndrome in 2017. Sanfilippo is also called “childhood Alzheimer’s” because it presents similarly to dementia. Abby has an attenuated form of Sanfilippo, meaning it is slower progressing. She writes alongside her other daughter, Emily, about hardships endured as a caregiver with honesty and humor.
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Articles by Kelly Wallis
It’s hard to believe the world is still in the midst of a pandemic that reared its ugly head two…
My daughter Abby has Sanfilippo syndrome, which is a terminal, genetic disorder. She will likely leave this earth before…
This is an update to my last column. When we left off, my family was about to leave our…
Clinical Trial, Here We Come!
If you have been following my column, you know that my 26-year-old daughter, Abby, has been on the verge…
What bookends to live between — diagnosis and death. This is a hard place to be, no matter where you…
This is a follow-up to my previous column about my 26-year-old daughter, Abby, potentially being accepted into a…
I recently received exciting news! My 26-year-old daughter, Abby, has been selected to potentially participate in a clinical trial…
Grief has been a prevalent part of my life for the past year or so. My mom unexpectedly passed…
I am tired. Caring for my 25-year-old daughter, Abby, whose body is giving up on her, is tiring. She has…