Rare Disease Day on Feb. 28 is an excellent opportunity to promote awareness of diseases that often receive less…
Articles by Kelly Wallis
My husband and I just returned from a wonderful Christmas vacation away from home. We enjoyed time with friends, relaxed,…
Caring for a loved one with a terminal illness is difficult. Not knowing the details or the timing of their…
As I write this, October has come to an end, and children are fully back in the swing of school.
I sometimes wish I could see into the future. Would knowing the timing of events to come help me plan…
The rare disease community faces many challenges. Medical costs, caring for an affected family member, and getting them to…
Raising children is a big responsibility. Parents experience so many emotions while rearing children — joy, sadness, frustration, gratitude, fear,…
My cancer has returned. My schedule is filled with chemotherapy and doctor appointments again. Currently, I receive chemotherapy infusions…
We do not live in a world of absolutes, a world of only black and white, right or wrong, good…
Sanfilippo syndrome is a rare, genetic disease that typically presents itself in children when they are either toddlers or…