Parents of terminally ill and special-needs children experience a multitude of emotions. Our feelings lie across a wide spectrum, and…
Kelly Wallis
Kelly Wallis lives in Houston, Texas. She is a music therapist who works with the elderly population, and also serves as the organist for her church. She lives with her husband of 31 years and her daughter Abby. Abby was diagnosed at age 22 with Sanfilippo syndrome in 2017. Sanfilippo is also called “childhood Alzheimer’s” because it presents similarly to dementia. Abby has an attenuated form of Sanfilippo, meaning it is slower progressing. She writes alongside her other daughter, Emily, about hardships endured as a caregiver with honesty and humor.
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Articles by Kelly Wallis
This time of year is a good opportunity to take stock of the wonderful people in our lives. Here is…
Do you ever feel like your faith is being tested? Like God is trying to see how much you can…
Raising a special-needs child can be isolating. You think no other child is like yours, and other parents won’t understand…
Children with Sanfilippo syndrome often have neurotypical siblings. These are rough waters for parents to navigate. You love them equally,…
Please Ask Me About My Child
People often don’t like talking about sad topics. They probably feel they lack adequate words. Most want to offer advice,…
My daughter Abby was diagnosed with Sanfilippo syndrome almost two years ago. It took a while to live with the…
My daughter Abby was 22 when she was diagnosed with Sanfilippo syndrome. We were devastated. Like any other significant…