I often think about grief, a feeling that everyone experiences at some point in their lives. Whether it involves the…
Kelly Wallis
Kelly Wallis lives in Houston, Texas. She is a music therapist who works with the elderly population, and also serves as the organist for her church. She lives with her husband of 31 years and her daughter Abby. Abby was diagnosed at age 22 with Sanfilippo syndrome in 2017. Sanfilippo is also called “childhood Alzheimer’s” because it presents similarly to dementia. Abby has an attenuated form of Sanfilippo, meaning it is slower progressing. She writes alongside her other daughter, Emily, about hardships endured as a caregiver with honesty and humor.
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Articles by Kelly Wallis
Most parents experience a time when they wish they could read their child’s mind. For example, when children are infants…
Motherhood is a gift. Having the opportunity to raise children is an honor. They need so much care, but they…
Living with an adult child who has a terminal disease is challenging. It demands patience, flexibility, kindness, perseverance, and advocacy.
My daughter Abby, 25, has Sanfilippo syndrome. It is a genetic, terminal disorder likened to Alzheimer’s disease. She…
My 25-year-old daughter Abby has a rare, terminal disease called Sanfilippo syndrome. The best way to describe the disease is…
Many parents will agree that our child’s diagnosis with a terminal illness was the worst news we could ever receive.
Raising a special needs child is challenging. It is physically tiring and emotionally draining. But it is incredibly rewarding, too.
For a parent, the worst thought in the world is losing a child. The love a parent has for his…
My 24-year-old daughter, Abby, has a terminal disease called Sanfilippo syndrome. It is likened to childhood Alzheimer’s. Children with this…