I revealed in my column last month that I carry around a large amount of emotional baggage. Most of…
Kelly Wallis
Kelly Wallis lives in Houston, Texas. She is a music therapist who works with the elderly population, and also serves as the organist for her church. She lives with her husband of 31 years and her daughter Abby. Abby was diagnosed at age 22 with Sanfilippo syndrome in 2017. Sanfilippo is also called “childhood Alzheimer’s” because it presents similarly to dementia. Abby has an attenuated form of Sanfilippo, meaning it is slower progressing. She writes alongside her other daughter, Emily, about hardships endured as a caregiver with honesty and humor.
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Articles by Kelly Wallis
I recently had the fortunate opportunity to travel out of state to visit a dear friend. I have a disabled…
Starting a new year is exciting. It’s a time of anticipating possibilities, potential, and new beginnings. Christmas is behind us,…
For many people, the holiday season is a happy, joyous time of year. It’s typically busy, as most of us…
My family recently had the pleasure of attending a gathering sponsored by the Cure Sanfilippo Foundation, a nonprofit that…
I recently attended the ADVANCE 2023 virtual conference about Sanfilippo syndrome, which provided a wealth of information about…
Our family recently gained a second caregiver for my daughter, Abby. Now we have two women who care for Abby…
Raising a disabled child is difficult. They require more help to be successful in the world. They may need something…
Raising a child inherently involves worry, and many parents stress most about their children’s well-being and safety. Some parents have…
In 2017, my daughter Abby was diagnosed with Sanfilippo syndrome, a rare, terminal disease. It’s sometimes referred to as…