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“Mom. Mom!” I turn away from loading the dishwasher to find my daughter yelling for me and looking a little scared. “What’s up, sweetie?” “Daddy’s yelling for you. Will’s hurt. There’s a lot of blood.” My heart jumps as I tell her to finish getting ready for bed, and then…
“Who’s ready to see the Easter Bunny?” I coo to my less than impressed 13-year-old. I’m sorry, he’s 13 and three-quarters, as of this month. He looks at me impassively and stifles a yawn. I’d let him sleep until 8:30 a.m., and he still wasn’t thrilled with me for waking him…
“Good morning, sweetheart. Ready to start the day with Momma? We’ve got a week of fun ahead of us!” I kept my voice light and happy as I woke up my son, Will, but my feelings were mixed. Will’s school district has added several extra weeklong breaks throughout the school…
“So how are you doing with the thought of leaving Will for that long?” my well-meaning friend asked as we discussed holiday plans after a workout class last month. “A week is a long time.” I looked at her speechless for a moment. I’d just told her that my daughter’s…
I sat in rapt attention in the dim theater, taking in every sound and motion on the stage in front of me. My husband and I had done it. We’d managed to get a babysitter so we could got on an actual date and enjoy one of our favorite holiday…
It was a cool spring night in early 2015 when we received the worst news of our lives. Our son, Will, had been diagnosed with Sanfilippo syndrome. How were we going to face this new journey? Within a few hours, we knew we wouldn’t have to face it alone.
“Do we get to go to the Halloween party next week, Momma?” my 10-year-old daughter asked the other day. “We do get to go!” I replied happily. “They gave me the date a long time ago and we were able to schedule it in. Dad and Will are probably going…
Standing in front of my mirror, I fluffed my freshly curled hair. “Well,” I murmured, “let’s see how this goes.” I grabbed my bag and keys while calling for my daughter. It was time to drive her to school and get myself to work. Somehow, against all odds, I’d found…
It’s another season of chaos in our house. I don’t know why I’m surprised. Chaos is our normal. Life with our son, Will, who has Sanfilippo syndrome, is rarely easy. Sometimes the challenges we face are expected, given his condition. But other times they are things we never…
About once a month, a group of friends and I share our latest favorite memes. It’s always a witty and humorous collection, so I take a few minutes to read through them when they’re sent around. This time, though, one of the them stopped me in my tracks. It read:…
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