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How my daughter with Sanfilippo handles birthday parties

My 5-year-old daughter, Liv, has Sanfilippo syndrome, a form of childhood Alzheimer’s. In her current phase of the disease, she’s hyper, impulsive, and has no sense of danger. Cognitively, she’s akin to a 1 year old. That makes play dates and birthday parties a large challenge. Liv…

Balancing logic and emotion isn’t easy as a Sanfilippo parent

Parenting children is challenging. Parenting children with special needs or developmental delays is even harder. You must consider many factors: age, ability, environmental and situational dynamics, setting, time of day, and more. My oldest daughter, Abby, was immediately admitted to the neonatal intensive care unit after she was born and…