“Oh, no.” That’s never a good thing to hear in our house. I pick up my pace as I walk…
Articles by Valerie Tharp Byers
For many, January is a month of renewal, a fresh start to a new year. It’s a time to make…
During this season of miracles, I invite you to celebrate one with our family. It happened the day before Thanksgiving,…
“He’s doing fantastic,” our geneticist gushes at our son Will’s yearly evaluation. “His mobility, his muscle tone … really, for…
October is my favorite month. I grew up in Ohio and loved the snap in the weather when fall finally…
When people learn what Sanfilippo syndrome is and that our 12-year-old son has it, their reactions are immediate. “Oh,…
“Get busy living or get busy dying.” As a teenager in the 1990s, I clearly remember that quote echoing off…
“Will’s just doing so well,” a well-intentioned person gushes to me. I smile, happy for the attention and recognition Will…
I look down at my hand and back at my face in the mirror. It’s time. I sigh and take…
It’s 1 a.m. on a Wednesday, and I’m sitting in my living room debating my options while listening to my…