Parenting a child with Sanfilippo syndrome results in many forms of grief. There is the diagnosis grief, when you mourn…
Articles by Valerie Tharp Byers
One of the most difficult things about having a child with an incurable terminal condition is the feeling of helplessness…
While we may not be talking about Bruno, it’s no secret that Disney’s latest animated offering, “Encanto,” is on the…
March 5, 2015, was the worst day of my life. I had stumbled upon a story from the “Today”…
A few years ago, I was chatting with a friend who was the primary caregiver for a family member with…
It happened. It came on so gradually I didn’t even comprehend what was happening until it was there. But there…
I was sore. It was nothing major, just the usual muscle aches following a good workout when you’ve been off…
This was my Wednesday afternoon: I’m changing my son’s diaper while talking on the phone with one of his…
“Don’t worry, they won’t go to college in diapers!” It’s the statement so many people give to parents as…
Summer — it’s a season of lots of fun, but also lots of difficulty for my family and many others…