Because of Sanfilippo syndrome‘s progressive behavioral and intellectual disabilities, it’s likely your child will need aids and adaptations to…
Articles by Mary Chapman
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…
If your child has Sanfilippo syndrome, physiotherapy can likely help with symptoms that include spasticity and…
Sanfilippo syndrome is a rare neurodegenerative disorder that causes intellectual and behavioral disabilities. Sleep problems are common, and…
Providing constant care and supervision for a child with Sanfilippo syndrome can be an emotionally draining task for parents.
Receiving a Sanfilippo syndrome diagnosis for your child may have come as a shock. But now that you…
Healthcare technology company RDMD has raised $14 million to further expand its platform seeking to accelerate research and…
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
Axovant Gene Therapies is collaborating with Invitae to offer free genetic testing in the United States and Canada…