Author Archives: Mary Chapman

Sanfilippo Syndrome and Sleep

Sanfilippo syndrome is a rare neurodegenerative disorder that causes intellectual and behavioral disabilities. Sleep problems are common, and often severe and difficult to manage. Here are some points to consider, including possible ways of managing disturbed sleep. What causes Sanfilippo syndrome? Mutations in genes that provide instructions for…

Mindfulness for Sanfilippo Syndrome Caregivers

Providing constant care and supervision for a child with Sanfilippo syndrome can be an emotionally draining task for parents. Beyond handling physical challenges and medical demands, you must deal with your child’s emotional needs and the impact a protracted illness can have on your family. A practice…