
As a Sanfilippo sibling, I struggle with our family’s uncertain future
At 25 years old, thinking about my future is scary. It will be filled with many life changes and milestones. As a Sanfilippo sibling, my future will also be filled with devastating loss and grief. At 28, my sister, Abby, has Sanfilippo syndrome, a rare, neurodegenerative disease. It has…