Channeling My Resentment Toward My Sister’s Disease

In my previous column, I discussed the importance of finding a balance between all of the emotions that come with being a Sanfilippo sibling. There are so many ups and downs in this life, and finding a place in between those extremes is crucial. My sister, Abby, has…

Parenting Siblings with Different Needs

Children with Sanfilippo syndrome often have neurotypical siblings. These are rough waters for parents to navigate. You love them equally, but how do you adequately care for their differing needs? My oldest daughter, Abby, has Sanfilippo syndrome. Her sister, Emily, is unaffected. Emily is incredibly smart, beautiful, kind, and…