Skip to content
Sanfilippo Syndrome News logo
  • About Sanfilippo
    What is Sanfilippo?
    Types
    Causes
    Symptoms
    Diagnosis
  • News
  • Columns
    Parenting a Sanfilippo Child — Kelly Wallis
    Saving Liv — Erin Stoop
    Archived columns
    • Finding My Peace with Sanfilippo — Emily Wallis
    • Plot Twist — Valerie Tharp Byers
  • Health insights
  • What can we help you find today?

November 15, 2019 Columns by Kelly Wallis

My Faith Has Been Tested by My Daughter’s Diagnosis

Do you ever feel like your faith is being tested? Like God is trying to see how much you can take? I don’t think God is malicious and means to push us to our breaking point, but it feels that way sometimes. Getting diagnosed with cancer and having your child…

Recent Posts

  • Seeing death and suffering makes me fear for my child’s future
  • Sanfilippo B therapy JR-446 gets orphan drug status in Europe
  • I hadn’t anticipated being a stay-at-home mom, but it works for us
  • Sanfilippo B enzyme replacement therapy wins orphan drug status
  • Trying to meet my son’s needs so he doesn’t feel like a ‘glass child’
  • Balancing logic and emotion isn’t easy as a Sanfilippo parent
  • Spruce to move tralesinidase alfa into Phase 3 clinical study
  • I’m hopeful about the future of Sanfilippo syndrome type B
  • HSPC transplant eases disease symptoms in Sanfilippo C mice
  • Forever a toddler: Grieving the independent child I’d dreamed of


Envelope icon

Subscribe to our newsletter

Get regular updates to your inbox.

Bionews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: info@bionews.com
Phone: 1-800-936-1363

  • About Us
  • Leadership
  • Our Culture
  • Editorial Policy
  • Advertising Policy
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2013-2025 All rights reserved.