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March 10, 2022 News by Lindsey Shapiro, PhD

GlycoNet to Build on ‘Encouraging’ Results of Stem Cell Gene Therapy

Researchers from the Canadian Glycomics Network (GlycoNet) are developing a new combination therapy that’s showing promising preclinical results for Sanfilippo syndrome. The therapy is designed to remove patients’ faulty cells, correct them, and return them back to the body, where they will replicate to produce new healthy cells. “We…

September 3, 2020 News by Mary Chapman

GlycoNet Grants $3.9M to Canadian Researchers to Study Sanfilippo, Other Diseases

The Canadian Glycomics Network (GlycoNet) has granted $3.9 million in funding for research projects aimed at mitigating the healthcare burden in Canada and contributing to a better understanding of diseases, including Sanfilippo syndrome. The recipients — multidisciplinary research institutions and their industry partners — will use the funding…

Recent Posts

  • Seeing death and suffering makes me fear for my child’s future
  • Sanfilippo B therapy JR-446 gets orphan drug status in Europe
  • I hadn’t anticipated being a stay-at-home mom, but it works for us
  • Sanfilippo B enzyme replacement therapy wins orphan drug status
  • Trying to meet my son’s needs so he doesn’t feel like a ‘glass child’
  • Balancing logic and emotion isn’t easy as a Sanfilippo parent
  • Spruce to move tralesinidase alfa into Phase 3 clinical study
  • I’m hopeful about the future of Sanfilippo syndrome type B
  • HSPC transplant eases disease symptoms in Sanfilippo C mice
  • Forever a toddler: Grieving the independent child I’d dreamed of


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