As My Son With Sanfilippo Syndrome Slows Down, Time Speeds Up

“Will’s just doing so well,” a well-intentioned person gushes to me. I smile, happy for the attention and recognition Will receives for his hard work. “I just see him up and walking so much more,” the person continues. “You can really tell he’s getting better!” I maintain my smile and…

7 Common Symptoms of Sanfilippo Syndrome

The symptoms of Sanfilippo syndrome can vary from child to child, and depend on the disease subtype. They can also change as the disease progresses. Here are the seven most common signs and symptoms of Sanfilippo syndrome. Developmental delays One of the most common and initial symptoms of Sanfilippo…