National MPS Society’s Maritime Gala on tap for May 13
Event happens ahead of International MPS Awareness Day on May 15
The National MPS Society will host its Maritime Gala May 13 on the San Francisco Bay in Tiburon, California, at the historic Corinthian Yacht Club to raise funds for its family support and research programs.
The event also observes International MPS Awareness Day, observed annually on May 15 to call attention to mucopolysaccharidosis disorders such as Sanfilippo syndrome, also known as mucopolysaccharidosis (MPS) type III, and mucolipidosis (ML).
“Join us as we gather as a community to celebrate and make a difference,” the organization states on a press release.
The black tie-optional affair includes a cocktail reception, hors d’oeuvres, live ragtime and swing music, dessert, and community “hero stories.” It also will feature live and silent auctions, which can be bid on remotely. The organization is accepting donated items for the auctions.
Tickets are $300 for general admission and $500 for VIP entry, which includes a cocktail hour with National MPS Society representatives, exclusive entertainment, photo opportunities, and early access to the silent auction. Sponsorship opportunities from $1,000 to $30,000 are also available.
“Chart your course and navigate through live and silent auctions, MPS HERO stories, cocktails, heavy hors d’oeuvres, live band and music, [thrilling] entertainment, and an exclusive VIP cocktail hour with our Executive Team,” the society’s event webpage reads.
For more information, send an email to [email protected] or call 919-806-0101.
On May 15, the organization and supporters will recognize members of the MPS and ML communities, thank researchers seeking cures, celebrate the community for its strength and supportive nature, and acknowledge the family members and caregivers of those with MPS and ML.
For MPS Awareness Week, which runs from May 15-21, the U.K.-based MPS Society is inviting supporters to sport something blue — the color that represents MPS — and help raise funds for the organization. It’s also asking supporters to share their stories on social media as well as its posts using the hashtag #ChaseTheSigns.
The National MPS Society identifies, funds, and partners with people and programs that seek to enhance the lives of those with MPS disorders. Its fundraising efforts since 2020 have gathered about $21.5 million for research and family support programs.
Sanfilippo syndrome is thought to affect between 1 in 50,000 to 1 in 250,000 people globally.
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