Parenting a Sanfilippo Child – a Column by Kelly Wallis

Houston-based Kelly is a music therapist working with special needs children every day. She’s also the organist for her church. She thoroughly enjoys having music weave into every part of her daily life and work. She’s been married to her husband, Jeff, for 25 years, and has two daughters, Abby and Emily. She writes about life as a caregiver for Abby, who has Sanfilippo syndrome.
October 11, 2019 Columns by Kelly Wallis

My Daughter’s Journey to a Diagnosis

My daughter Abby was 22 when she was diagnosed with Sanfilippo syndrome. We were devastated. Like any other significant event, things are now classified as “before” or “after” the diagnosis. Abby was somewhat self-sufficient as a child. She could eat by herself and get dressed with some assistance. She…

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