Parenting a Sanfilippo Child – a Column by Kelly Wallis

Houston-based Kelly is a music therapist working with special needs children every day. She’s also the organist for her church. She thoroughly enjoys having music weave into every part of her daily life and work. She’s been married to her husband, Jeff, for 25 years, and has two daughters, Abby and Emily. She writes about life as a caregiver for Abby, who has Sanfilippo syndrome.

Balancing logic and emotion isn’t easy as a Sanfilippo parent

Parenting children is challenging. Parenting children with special needs or developmental delays is even harder. You must consider many factors: age, ability, environmental and situational dynamics, setting, time of day, and more. My oldest daughter, Abby, was immediately admitted to the neonatal intensive care unit after she was born and…

A new year brings uncertainty for Sanfilippo families

Starting a new year is exciting. It’s a time of anticipating possibilities, potential, and new beginnings. Christmas is behind us, and we start over. All the hastiness of the holiday season has slowed down, and we now contemplate what the new year will bring. During the holidays, there is an…