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Recent Posts
- Tralesinidase alfa ERT for Sanfilippo type B children put on fast track
- Educating others about Sanfilippo syndrome, one bite at a time
- Teen’s acute psychotic disorder leads to Sanfilippo A diagnosis
- Feeding our toddler with Sanfilippo syndrome can be stressful
- It’s hard to stay positive when Sanfilippo is so cruel
- Heart condition SSS found in Sanfilippo patient for first time
- Outside, the world is pressing forward; inside, progress is still
- FDA requests manufacturing changes for UX111 gene therapy
- How my daughter with Sanfilippo handles birthday parties
- Seeing death and suffering makes me fear for my child’s future