Recent Posts
- Finding employment as a parent and caregiver feels as rare as Sanfilippo
- As a Sanfilippo sibling, I struggle with our family’s uncertain future
- Attending a Sanfilippo conference rejuvenates my hope
- Memory, well-being tests can track Sanfilippo mice disease progression
- Taking a risk pays off during a cruise with our son, who has Sanfilippo
- Sanfilippo A enzyme replacement JR-441 test to begin this year
- Puberty and pizza rolls: Facing feeding challenges with Sanfilippo
- I wish I had a sibling support group in the Sanfilippo community
- To the caregivers of my daughter with Sanfilippo: I see and hear you
- Individualized trials of Sanfilippo anti-inflammatory therapies sought