Joe Pierce, —
Articles by Joe Pierce
Recent Posts
- Seeing death and suffering makes me fear for my child’s future
- Sanfilippo B therapy JR-446 gets orphan drug status in Europe
- I hadn’t anticipated being a stay-at-home mom, but it works for us
- Sanfilippo B enzyme replacement therapy wins orphan drug status
- Trying to meet my son’s needs so he doesn’t feel like a ‘glass child’
- Balancing logic and emotion isn’t easy as a Sanfilippo parent
- Spruce to move tralesinidase alfa into Phase 3 clinical study
- I’m hopeful about the future of Sanfilippo syndrome type B
- HSPC transplant eases disease symptoms in Sanfilippo C mice
- Forever a toddler: Grieving the independent child I’d dreamed of