Joe Pierce,  —

Recent Posts

• Finding employment as a parent and caregiver feels as rare as Sanfilippo
• As a Sanfilippo sibling, I struggle with our family’s uncertain future
• Attending a Sanfilippo conference rejuvenates my hope
• Memory, well-being tests can track Sanfilippo mice disease progression
• Taking a risk pays off during a cruise with our son, who has Sanfilippo
• Sanfilippo A enzyme replacement JR-441 test to begin this year
• Puberty and pizza rolls: Facing feeding challenges with Sanfilippo
• I wish I had a sibling support group in the Sanfilippo community
• To the caregivers of my daughter with Sanfilippo: I see and hear you
• Individualized trials of Sanfilippo anti-inflammatory therapies sought