An emotional video about a boy with Sanfilippo syndrome and his parents’ fight to save him has raised about…
Articles by Mary Chapman
A photo of a bespectacled young boy, his red baseball cap slightly askew as he  enjoys time outside, will be…
The genetic disorder Sanfilippo syndrome, also known as mucopolysaccharidosis type III, is so rare that most physicians are unfamiliar with it.
Sanfilippo syndrome is a neurodegenerative disorder that affects about 1 in 70,000 births. Raising awareness of this rare…
On Nov. 16, World Sanfilippo Awareness Day, supporters will bring global attention to the rare neurodegenerative disorder, hopefully sparking…
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their…
A new initiative led by the Cure Sanfilippo Foundation is seeking to provide more insight on the impact of…
Eating and drinking can be problematic in Sanfilippo syndrome, a rare neurodegenerative disorder characterized by intellectual and behavioral disabilities. Finding…
Sanfilippo syndrome patients and caregivers are being asked to help speed the development of potential disease treatments by joining  …
The Canadian Glycomics Network (GlycoNet) has granted $3.9 million in funding for research projects aimed at mitigating the healthcare…