The European Commission is expected to propose a new governing framework for health data next month, called the European Health…
Articles by Marisa Wexler
Eurordis opened a campaign, called Rare 2030 Action, that is seeking to establish a European action plan for…
A newly funded research study will test whether an investigational therapy dubbed a “molecular tweezer” — officially called CLR01 —…
The National Organization for Rare Disorders (NORD)’s RareLaunch training program will host two days of…
The European Medicines Agency has granted orphan drug designation to SLS-005 (trehalose) for the treatment of…