Erin Stoop,  —

Erin Stoop lives in Wisconsin with her husband Tyler, daughter Liv and son Liam. Her daughter Liv was diagnosed with Sanfilippo Syndrome Type B in March of 2022. Her goal for her column is to share the ups and downs that come along with parenting a child with a rare terminal genetic disorder. She hopes to be relatable and inspiring. She and her husband are both pharmacists who met on an online dating site, and somehow managed to unknowingly both carry the recessive gene for Sanfilippo. What are the odds? Well the odds of Type B Sanfilippo are one in 200,000. All jokes aside, Erin truly enjoys advocating for Liv. She's glad you're here.