Sanfilippo syndrome is a rare progressive disease that affects the nerve cells. The disease can cause a…
Emily Malcolm, PhD
Emily holds a Ph.D. in Biochemistry from the University of Iowa and is currently a postdoctoral scholar at the University of Wisconsin-Madison. She graduated with a Masters in Chemistry from the Georgia Institute of Technology and holds a Bachelors in Biology and Chemistry from the University of Central Arkansas. Emily is passionate about science communication, and, in her free time, writes and illustrates children’s stories.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
Articles by Emily Malcolm, PhD
Tips for Educators of Children With Sanfilippo Syndrome
Children with special needs can bring certain challenges for caregivers and educators. Young patients with Sanfilippo syndrome face…
Building an Individualized Education Plan (IEP) for Children with Sanfilippo Syndrome
Sanfilippo syndrome is a rare genetic disorder that causes brain damage and physical and developmental regression in children.
Learning that your child or other family member has a rare disease like Sanfilippo syndrome can bring a…
Support Groups for Families Affected by Sanfilippo Syndrome
Families affected by a rare disease such as Sanfilippo syndrome may struggle with stress, depression, and feelings…
Travel Tips for Families Affected by Sanfilippo Syndrome
Traveling can be challenging for people with Sanfilippo syndrome, depending on the severity of symptoms and the nature…
Music Therapy for People with Sanfilippo Syndrome
Many with Sanfilippo syndrome are non-verbal, and have difficulty communicating with their parents or caregivers. Music therapy may…
How Will Sanfilippo Syndrome Affect My Child’s Life Expectancy?
As a parent, learning that your child has a rare disease like Sanfilippo syndrome, or mucopolysaccharidosis type III…
Many children with Sanfilippo syndrome display behavioral problems similar to children with autism spectrum disorders. Children can hurt…
How Can I Prepare for Genetic Testing for Sanfilippo Syndrome?
Sanfilippo syndrome, a progressive disorder that affects the brain and spinal cord and whose symptoms start in early…