Sanfilippo Syndrome News
Recent Posts
- Sanfilippo Families Are in This Fight Together
- I Wish I Could Read My Daughter’s Mind
- Rare 2030 Action Campaign Pushing for European Plan for Rare Diseases
- Advocates Can Try for Grants Ahead of Rare Disease Week on Capitol Hill
- Carriers Likely Not at Higher Risk of Adult-onset Dementia
- Did I Appreciate My Daughter Enough Before Sanfilippo?
- The Things We Carry: Welcome to ‘Plot Twist’
- EMDR May Be Effective for Treating Parents’ PTSD
- Learning to Find Joy in Life as a Sanfilippo Sibling
- A Thank-you Note to My Biggest Supporter