Parenting a Sanfilippo Child – a Column by Kelly Wallis
Houston-based Kelly is a music therapist working with special needs children every day. She’s also the organist for her church. She thoroughly enjoys having music weave into every part of her daily life and work. She’s been married to her husband, Jeff, for 25 years, and have two daughters, Abby and Emily. I write about life as a caregiver for Abby, who has Sanfilippo syndrome.
My 24-year-old daughter, Abby, has a terminal disease called Sanfilippo syndrome. It is likened to childhood Alzheimer’s. Children with this disease gradually lose all speech, motor, and cognitive abilities ... Read more